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Name: Marie-Eve Carrier

Email Address: carrier.marie.eve@gmail.com

Position: Research Associate  

Biography:

Marie-Eve Carrier is a Research Associate working with Dr. Brett Thombs since 2013. Marie-Eve graduated from the Université de Montréal in 2006, with a Master’s degree in Anthropology. Between 2006 and 2013, Marie-Eve coordinated many quantitative and qualitative studies in the perinatal mental health research field. Marie-Eve joined the SPIN team in March 2013. She coordinates SPIN’s projects and activities on a day-to-day basis. For the past years, she has been closely involved in the establishment and rapid growth of SPIN, which is composed of researchers, clinicians, and people living with scleroderma from around the world. Marie-Eve and the SPIN research team are working everyday towards fulfilling SPIN’s mission: providing people living with scleroderma free access to support programs to improve their quality of life.

Selected Publications (2018-2020):

Wu Y, Kwakkenbos L, Henry RS, Tao L, Harb S, Bourgeault A, Carrier ME, Levis B, Sun Y, Bhandari PM, Carboni-Jiménez A, Gagarine M, He C, Krishnan A, Negeri Z, Neupane D, Bartlett S, Benedetti A, Thombs BD, Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 Investigators,12 SPIN COVID-19 Patient Advisory Team. Validation of the COVID-19 Fears Questionnaires for Chronic Medical Conditions: a Scleroderma Patient-centered Intervention Network COVID-19 Cohort Study. J Psychosom Res.

 

Sommer SJ, Harel D, Kwakkenbos L, Carrier ME, Gholizadeh S, Gottesman K, Malcarne V, Thombs BD, SPIN Investigators. Assessing Differential Item Functioning for the Social Appearance Anxiety Scale A Scleroderma Patient-centered Intervention Network (SPIN) Cohort Study. BMJ Open.  

 

Kwakkenbos L, Carboni-Jiménez A, Carrier ME, Pépin M, Peláez S, Malcarne VL, El-Baalbaki G, Thombs BD, Scleroderma Patient-centered Network (SPIN) Support Group Project Advisory Team. Reasons for not participating in scleroderma support groups: a comparison of results from the North American and European Scleroderma Support Group Surveys. Disabil Rehabil.  

Thombs BD, Kwakkenbos L, Henry RS, Carrier ME, Patten S, Harb S, Bourgeault A, Tao L, Bartlett SJ, Mouthon L, Varga J, Benedetti A, SPIN Patient Advisors, SPIN Investigators. Changes in mental health symptoms from pre-COVID-19 to COVID-19 among participants with systemic sclerosis from four countries: a Scleroderma Patient-centered Intervention Network (SPIN) Cohort Study. J Psychosom Res. 2020;139:110262. 

 

Daste C, Abdoul H, Foissac F, Papelard A, Alami S, Kwakkenbos L, Carrier ME, Lefèvre-Colau M-M, Thombs B, Poiraudeau S, Rannou F, Mouthon L, Nguyen C. Development of a new patient-reported outcome measure to assess activities and participation in people with systemic sclerosis: The Cochin 17-item Scleroderma Functional Scale. Br J Dermatol. 2020;183(4):710-718.  

 

Rice DB, Cañedo-Ayala M, Carboni-Jiménez A, Carrier ME, Cumin J, Malcarne V, Hagedoorn M, Thombs BD, Scleroderma Caregiver Advisory Team. Challenges and support service preferences of informal caregivers of people with systemic sclerosis: A cross-sectional survey. Disabil Rehabil. 2020;42(16):2304-2310. 

Thombs BD, Kwakkenbos L, Carrier, ME, Bourgeault A, Tao L, Harb S, Gagarine M, Rice D, Bustamante L, Ellis K, Duchek D, Wu Y, Bhandari PM, Neupane D, Carboni-Jiménez A, Henry RS, Krishan A, Sun Y, Levis B, He C, Turner KA, Benedetti A, Culos-Reed N, El-Baalbaki G, Hebblethwaite S, Bartlett SJ, Dyas L, Patten S, Varga J, Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 Patient Advisory Team, SPIN Investigators. Protocol for a partially nested randomised controlled trial to evaluate the effectiveness of the Scleroderma Patient-centered Intervention Network COVID-19 Home-isolation Activities Together (SPIN-CHAT) Program to reduce anxiety among at-risk scleroderma patients. J Psychosom Res. 2020;135:110132.  

Carrier ME, Kwakkenbos L, Nielson WR, Fedoruk C, Nielsen K, Milette K, Pope J, Frech T, Gholizadeh S, Hummers L, Johnson SR, Piotrowski P, Jewett L, Gordon J, Chung L, Bilsker D, Turner KA, Cumin J, Welling J, Fortune C, Leite C, Gottesman K, Sauve M, Rodriguez Reyna, TS, Hudson M, Larche M, van Breda W, Suarez Almazor ME, Bartlett SJ, Malcarne VL, Mayes MD, Boutron I, Mouthon L, Wigley F, Thombs BD, SPIN Investigators. The Scleroderma Patient-centered Intervention Network Self-management (SPIN-SELF) Program: Protocol for a Randomized Feasibility Trial. JMIR Res Protoc. 2020;9(4):e16799. 

Cañedo-Ayala M, Rice DB, Levis B, Carrier ME, Cumin J, Malcarne V, Hagedoorn M, Thombs BD, Scleroderma Caregiver Advisory Committee. Factors associated with symptoms of depression among informal caregivers of people with systemic sclerosis: a cross-sectional study. Disabil Rehabil. 2020;42(3):394-399. 

Thombs BD, Aguila K, Dyas L, Carrier ME, Fedoruk C, Horwood L, Cañedo-Ayala M, Sauvé M, Kwakkenbos L, Malcarne VL, El-Baalbaki G, Peláez S, Connolly K, Hudson M, Platt RW, SPIN-SSLED Support Group Advisory Team. Protocol for a partially nested randomized controlled trial to evaluate the effectiveness of the Scleroderma Patient-centered Intervention Network Support Group Leader EDucation (SPIN-SSLED) Program. Trials. 2019;20:717. 

Becetti K, Kwakkenbos L, Carrier ME, Gordon J, Nguyen J, Mancuso C, Mouthon L, Nguyen C, Rannou F, Welling J, Thombs BD, Spiera R, SPIN Investigators. Physical or occupational therapy utilization in systemic sclerosis: a Scleroderma Patient-centered Intervention Network Cohort study. J Rheumatol. 2019;46(12):1605-1613. 

Thombs BD, Dyas L, Pépin M, Aguila K, Carrier ME, Tao L, Harb S, Malcarne VL, El-Baalbaki G, Peláez S, Sauvé M, Hudson M, Platt RW, SPIN-SSLED Patient Advisory Team. Scleroderma Patient-centered Intervention Network – Scleroderma Support group Leader EDucation (SPIN-SSLED) Program: Non-randomised feasibility trial. BMJ Open. 2019;9:e029935.  

 

Kwakkenbos L, Cumin J, Carrier ME, Bartlett SJ, Malcarne VL, Mouthon L, Nielson WR, Rannou R, Welling J, Thombs BD, SPIN Investigators. Factors associated with patient-reported likelihood of using online self-care interventions: a Scleroderma Patient-centered Intervention Network (SPIN) Cohort study. BMJ Open. 2019;9:e029542.  

Pépin M, Kwakkenbos L, Carrier ME, Peláez S, El-Baalbaki G, Malcarne VL, Thombs BD, Scleroderma Patient-centered Network (SPIN) Support Group Project Advisory Team. Reasons for attending support groups and organizational preferences: a replication study using the North American Scleroderma Support Group Survey. J Scleroderma Relat Disord. 2019;4(3):173-186. 

 

Tao L, Fedoruk C, Turner K, Cumin J, Carrier ME, Carboni-Jiménez A, Pépin M, Kwakkenbos L, Thombs BD, SPIN Patient Advisory Board. The Scleroderma Research Topics Survey for patients and health care professionals: a Scleroderma Patient-centered Intervention Network (SPIN) project. J Scleroderma Relat Disord. 2019;4(3):165-172. 

Carrier ME, Kwakkenbos L, Boutron I, Welling J, Sauvé M, van den Ende C, Schouffoer AA, Hudson M, Thombs BD, Mouthon L, SPIN Investigators. Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network hand exercise program (SPIN-HAND): study protocol. J Scleroderma Relat Disord. 2018;3(1):91-97.  

First-authored Poster Presentations:

Carrier ME,  Kwakkenbos L, Nielson WR, Fedoruk C, Nielsen K, Milette K, Pope J, Frech T, Gholizadeh S, Hummers L, Johnson SR, Piotrowski P, Jewett L, Gordon J, Chung L, Bilsker D, Turner K, Cumin J, Welling J, Fortune C, Leite C, Gottesman K, Sauve M, Rodriguez Reyna TS, Hudson M, Larche M, van Breda W, Suarez-Almazor ME, Bartlett SJ, Malcarne VL, Mayes MD, Boutron I, Mouthon L, Wigley F, Thombs BD, SPIN Investigators. Randomized Feasibility Trial of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program. 6th Systemic Sclerosis World Congress. Prague, Czech Republic, March 2020. 

Carrier ME, Kwakkenbos L, Thombs BD, SPIN Investigators. An International Collaboration to Collect Data and Develop Online Interventions for Scleroderma Patients and an Update from the Scleroderma Patient-centered Intervention Network (SPIN). Scleroderma Foundation Annual Patient Conference. New Orleans, Louisiana, USA. July 2016.

Carrier ME, Kwakkenbos L, Thombs BD, SPIN Investigators. An International Collaboration to Collect Data and Develop Online Interventions for Scleroderma Patients and an Update from the Scleroderma Patient-centered Intervention Network (SPIN). 4th Systemic Sclerosis World Congress, Lisbon, Portugal. February 2016.

 

Carrier ME, Kwakkenbos L, Thombs BD, SPIN investigators. An international collaboration to collect data and develop online interventions for scleroderma patients: the Scleroderma Patient-centered Intervention Network (SPIN). 2015 Scleroderma National Conference, Scleroderma Society of Canada, Hamilton, Ontario, Canada. September 2015.